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2013, Prevention Science
The study developed a multi-dimensional measure to assess participant responsiveness to a preventive intervention, and applied this measure to study how participant baseline characteristics predict responsiveness and how responsiveness predicts program outcomes. The study was conducted with caregivers who participated in the parenting-focused component of the Family Bereavement Program (FBP), a prevention program for families that have experienced parental death. The sample consisted of 89 caregivers assigned to the intervention condition in the efficacy trial of the FBP. Positive parenting, caregiver depression, and child externalizing problems at baseline were found to predict caregivers' use of program skills outside the group, and more child internalizing problems predicted more positive perceptions of the group environment. Higher levels of skill use during the program predicted increased positive parenting at the 11-month follow-up, whereas positive perceptions of the group environment predicted decreased caregiver depressive symptoms at follow-up. Caregiver skill use mediated the relation between baseline positive parenting and improvements in positive parenting at 11-month follow-up, and skill use and perceived group environment mediated changes in caregiver depression from baseline to 11month follow-up.
Journal of Clinical Child & Adolescent Psychology, 2012
This study tested the effect of the Family Bereavement Program (FBP), a preventive intervention for bereaved families, on effective parenting (e.g. caregiver warmth, consistent discipline) six years after program completion. Families (n=101; 69% female caregivers; 77% Caucasian, 11% Hispanic) with children between ages 8-16 who had experienced the death of one parent were randomized to the FBP (n=54) or a literature control condition (n=47). Multiple regression analyses conducted within a multilevel framework indicated that the FBP had a significant positive impact on a multi-rater, multi-measure assessment of parenting at 6-year follow-up, controlling for pretest levels of parenting and child mental health problems. Mediation analyses showed that short-term program effects on parenting, including caregiver warmth and effective discipline, significantly mediated the impact of the FBP on effective parenting six years later.
Family Science, 2013
This paper describes a research-based program designed to promote resilience of parentallybereaved children and their bereaved surviving parent. A contextual resilience model is described as the conceptual foundation of the program. The program is designed to enhance specific parenting and coping skills and to help caregivers and children accomplish goals they set for themselves at the outset of the program. The content of the twelve-sessions and the approach to teaching and supporting parents work on their program and personal goals are described. Evaluation of the program using a randomized experimental design indicates that the program is effective in promoting resilient outcomes of children and of the bereaved parent six-years following their participation in the program. Keywords bereaved children family intervention resilience The Family Bereavement Program is based on a contextual resilience conceptual framework (Sandler, Wolchik, & Ayers, 2008) of family adaptation following the death of a parent. The adaptation process enables bereaved parents and children to satisfy their basic needs and to accomplish developmentally appropriate life tasks in the newly restructured family. Basic needs include the need for safety and biological integrity, positive evaluation of self, a sense of control, and meaningful and supportive social relationships (Sandler, 2001). The death of a parent threatens the family's ability to meet these needs by disrupting bonds to the surviving parent and raising doubts about what is controllable and by leading to other negative stressors that threaten the stability of the child's world. Developmentally appropriate life tasks differ across infancy, childhood and adolescents, but across these developmental periods the family plays a critical role in supporting successful task accomplishment (Sandler, 2001). For the surviving parent the death of their spouse is a massive disruption of their world, challenging them to reconstruct a life in which their own needs for relationship, control, and well-being can be met. For both children and their parent, successfully meeting their basic needs and accomplishing their developmental life tasks lead to more resilient outcomes. Resilient outcomes are defined broadly to include lower levels of problems (e.g. mental health problems, substance abuse and physical illness) and higher levels of life satisfaction and well-being (e.g., developmentally appropriate role performance in school, work and relationships, positive subjective sense of well-being, efficacy and self-worth). Resilient outcomes following bereavement also include lower levels of intrusive and distressing grief over time and higher
Journal of Consulting and Clinical Psychology, 2003
This article presents an experimental evaluation of the Family Bereavement Program (FBP), a 2-component group intervention for parentally bereaved children ages 8-16. The program involved separate groups for caregivers, adolescents, and children, which were designed to change potentially modifiable risk and protective factors for bereaved children. The evaluation involved random assignment of 156 families (244 children and adolescents) to the FBP or a self-study condition. Families participated in assessments at pretest, posttest, and 11-month follow-up. Results indicated that the FBP led to improved parenting, coping, and caregiver mental health and to reductions in stressful events at posttest. At follow-up, the FBP led to reduced internalizing and externalizing problems, but only for girls and those who had higher problem scores at baseline.
BMC palliative care, 2015
The aim of the current study is to determine the effects of caregiving on bereavement outcome. The study will address two important gaps in the research literature: (1) the relationship between pre-death distress and post-death outcomes and (2) family caregivers' anticipation and preparation of the death of the person for whom they care. We will conduct a longitudinal, prospective study of adult family caregivers of adult patients receiving palliative care. All participants will complete a questionnaire administered at four points - approximately 4-8 weeks prior to bereavement, and 3-4, 6-7, and 9-10 months post-bereavement. The questionnaire includes measures of multidimensional caregiving experiences (strain, distress, positive appraisals, and family wellbeing), caregiver prolonged grief, multidimensional grief responses (despair, panic behaviour, blame and anger, detachment, disorganisation, and personal growth), prolonged grief, quality of life, general health (psychological...
Death Studies, 2013
Journal of Palliative Medicine, 2019
Background: In 2018, >75,000 children were newly affected by the diagnosis of advanced cancer in a parent. Unfortunately, few programs exist to help parents and their children manage the impact of advanced disease together as a family. The Enhancing Connections-Palliative Care (EC-PC) parenting program was developed in response to this gap. Objective: (1) Assess the feasibility of the EC-PC parenting program (recruitment, enrollment, and retention); (2) test the short-term impact of the program on changes in parent and child outcomes; and (3) explore the relationship between parents' physical and psychological symptoms with program outcomes. Design: Quasi-experimental two-group design employing both within-and between-subjects analyses to examine change over time and change relative to historical controls. Parents participated in five telephonedelivered and fully manualized behavioral intervention sessions at two-week intervals, delivered by trained nurses. Behavioral assessments were obtained at baseline and at three months on parents' depressed mood, anxiety, parenting skills, parenting self-efficacy, and symptom distress as well as children's behavioralemotional adjustment (internalizing, externalizing, and anxiety/depression). Subjects: Parents diagnosed with advanced or metastatic cancer and receiving noncurative treatment were eligible for the trial provided they had one or more children aged 5-17 living at home, were able to read, write, and speak English, and were not enrolled in a hospice program. Results: Of those enrolled, 62% completed all intervention sessions and post-intervention assessments. Withingroup analyses showed significant improvements in parents' self-efficacy in helping their children manage pressures from the parent's cancer; parents' skills to elicit children's cancer-related concerns; and parents' skills to help their children cope with the cancer. Between-group analyses revealed comparable improvements with historical controls on parents' anxiety, depressed mood, self-efficacy, parenting skills, and children's behavioral-emotional adjustment. Conclusion: The EC-PC parenting program shows promise in significantly improving parents' skills and confidence in supporting their child about the cancer. Further testing of the program is warranted.
OMEGA - Journal of Death and Dying, 2014
This article describes a preventive intervention to promote resilience of parentally bereaved youth. This intervention includes separate but concurrent programs for youth and caregivers that were developed to change empirically-supported risk and protective factors. We first discuss the risk that parental death confers to youth mental health and social adaptation outcomes. Next, we discuss the theoretical framework underlying this program. After describing the content and structure of the program, we describe the results of an experimental field trial and discuss directions for future work.
Journal of Palliative Medicine, 2002
have designed and run a randomized experimental trial to evaluate the Family Bereavement Program, an intervention for parentally-bereaved children and the surviving parent. The program is derived from clinical observations and research showing that loss of a parent is a highly stressful event, which can lead to future mental health problems in the child. Specifically, these researchers note that the death of a parent can lead to further family stressors, which may increase mental health problems of the surviving parent and have a negative effect on the parenting received by the child. This education and support program is designed to build coping skills within children themselves and to promote the parent's use of healthy and effective parenting skills. For children, the intervention aims to teach problem solving and emotional regulation skills to help them recognize and deal with their feelings as well as the stressful situations that can follow the death of a parent. For parents, the targeted parenting skills include fostering a warm and responsive relationship with the child, maintaining positive routines, and using effective discipline. To achieve these goals, the researchers designed separate courses for parents, children, and adolescents, which take place over twelve consecutive weeks. These sessions include group "homework" so that all family members are developing and practicing dovetailed skills. Sandler, Ayers, and Wolchik are reporting on their findings from the experimental evaluation of this group intervention elsewhere. Here they focus on the details of what they did, barriers they faced and strategies for overcoming them, as well as how the Family Bereavement Program might be adapted to other non-experimental settings.
American Journal of Community Psychology, 1992
We have illustrated how our “small theory” (Lipsey, 1990) of bereavement guided the development and evaluation of a preventive intervention for bereaved children. Our small theory, based on prior empirical research, enabled us to identify family processes that appeared to mediate the effects of parental death on child mental health. Our intervention was designed to attempt to change these processes. The evaluation of our experimental trial of the intervention assessed changes on these processes as well as the more distal mental health outcomes. The experimental trial showed some-what encouraging results, in terms of the program's ability to modify the warmth of the parent–child relationship and to decrease symptomatology in the adolescent children. We also obtained further empirical support for our underlying theoretical model. Finally, implications for redesign of the program were derived from assessing the adequacy of the program components to change each of the mediators in the theoretical model.
Journal of Child and Family Studies, 2017
Objectives: Self-compassion, which involves mindfulness, self-kindness, and common humanity, has been found to be related to individuals’ mental health. Few studies have examined caregivers’ self-compassion in relation to parenting behaviors and child adjustment in addition to its relation their own mental health. In the current study we examined caregivers’ self-compassion as a protective factor related to parentally bereaved children’s internalizing and externalizing problems and further tested whether these relations were mediated by caregivers’ mental health (complicated grief and psychological distress) and parenting. Methods: The sample consisted of 74 caregivers (female = 78.4%) who participated in a larger study designed for bereaved families. At T1 (baseline) and T2 (20 weeks later), caregivers completed measures on demographic information, self-compassion, complicated grief, parental warmth, and consistent discipline, as well as child internalizing and externalizing proble...
Death Studies, 2020
The Grief Facilitation Inventory (GFI) is a newly-developed measure of caregiver behaviors theorized to facilitate or hinder children's adaptive grief reactions. We examine its factor structure, reliability, and validity. An exploratory factor analysis identified four factors: Ongoing Connection, Existential Continuity/Support, Caregiver Grief Expression, and Grief Inhibition/Avoidance. Both child-and caregiver-report versions had adequate-to-good internal consistency. The child-report GFI showed evidence of criterion-referenced validity via significant correlations with measures of child maladaptive grief and other psychological symptoms. Results provide preliminary evidence of the reliability, validity, and clinical utility of the GFI as a measure of caregiver grief-facilitation behaviors.
Death Studies, 2020
Parents and children risk developing psychological health problems following the death of a partner/parent and may need professional support. This study used the reliable change criterion and clinically significant change to examine the outcomes of the Grief and Communication Family Support Intervention, comprising three family meetings with a family therapist, among 10 parents and 14 children, using pre-post outcome scores. The results provided preliminary evidence that the Grief and Communication Family Support Intervention may improve self-esteem and reduce anxiety in some parents and may improve communication and reduce internalizing and externalizing problems in some children.
Journal of Abnormal Child Psychology, 2006
Investigated whether three self-system beliefs, fear of abandonment, coping efficacy, and self-esteem, mediated the relations of stressors and caregiver-child relationship quality with concurrent and prospective internalizing and externalizing problems in a sample of children who had experienced parental death in the previous 2.5 years. The cross-sectional sample consisted of 340 children ages 7-16 and their surviving parent/current caregiver; the longitudinal analyses employed a subset of this sample that consisted of 100 children and their parents/caregivers who were assessed at three time points. A multirater, multimethod measure of caregiver-child relationship quality and a multirater measure of children's mental health problems were used. The cross-sectional model supported a mediational relation for fear of abandonment, coping efficacy, and self-esteem. The three-wave longitudinal model showed that fear of abandonment at Time 2 mediated the relation between stressors at Time 1 and internalizing and externalizing problems at Time 3. Implications of these findings for understanding the development of mental health problems in parentally bereaved children and designing interventions for this at-risk group are discussed. KEY WORDS: mental health problems of parentally bereaved children; negative life events; self-system beliefs; fear of abandonment; self-esteem; coping efficacy. Currently, there are approximately 2,213,000 children and adolescents younger than 18 (3.4%) in the United States who have experienced the death of a parent (Social Security Administration, 2000). Recent reviews have provided consistent evidence that bereavement is significantly related to depressive symptoms, withdrawal problems, and academic problems (
Journal of Pain and Symptom Management, 2017
Context and Objectives. Screening and baseline data on 170 American families (620 individuals), selected by screening from a palliative care population for inclusion in a randomized controlled trial of family-focused grief therapy, were examined to determine whether family dysfunction conferred higher levels of psychosocial morbidity. We hypothesized that greater family dysfunction would, indeed, be associated with poorer psychosocial outcomes among palliative care patients and their family members. Methods. Screened families were classified according to their functioning on the Family Relationships Index (FRI) and consented families completed baseline assessments. Mixed-effects modeling with post hoc tests compared individuals' baseline psychosocial outcomes (psychological distress, social functioning, and family functioning on a different measure) according to the classification of their family on the FRI. Covariates were included in all models as appropriate. Results. For those who completed baseline measures, 191 (30.0%) individuals were in low-communicating families, 313 (50.5%) in uninvolved families, and 116 (18.7%) in conflictual families. Family class was significantly associated (at ps # 0.05) with increased psychological distress (Beck Depression Inventory and Brief Symptom Inventory) and poorer social adjustment (Social Adjustment Scale) for individual family members. The family assessment device supported the concurrent accuracy of the FRI. Conclusion. As predicted, significantly greater levels of individual psychosocial morbidity were present in American families whose functioning as a group was poorer. Support was generated for a clinical approach that screens families to identify those at high risk. Overall, these baseline data point to the importance of a family-centered model of care. J Pain Symptom Manage 2017;54:126e131.
Objectives-This paper reports on results from a randomized experimental trial of the effects of the Family Bereavement Program (FBP) on multiple measures of grief experienced by parentallybereaved children and adolescents over a six year period of time.
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